Towards a More Connected Health Research Ecosystem: A Framework for Interoperable Health Data Commons
04/06/2025 , 2306/2309
Langue: English

The Research Data Alliance (RDA) is a global network of experts that fosters collaboration on key data-related challenges, such as interoperability. The Global Open Research Commons (GORC) model is one example that provides a high-level framework for interoperability across diverse research commons. This presentation will introduce the Health Data Commons GORC Profile Working Group, which aims to adapt the GORC model for health data commons (HDCs). By developing a standardized metadata schema, this work will enhance the findability, accessibility, interoperability, and reusability (FAIR principles) of health data, ultimately supporting researchers, clinicians, and improving patient care. This work has the potential to significantly impact the health research ecosystem, including the vital role health librarians play in supporting data-driven research. This presentation will provide an overview of the working group's objectives and progress, and discuss the potential implications of this work for the future of health data sharing and discovery.

Alyssa Foote is a health data and informatics professional with expertise in leveraging data for improved health outcomes. With a Master of Data Science from UBC and a Bachelor of Science in Health Information Science and Computer Science from UVic, she has experience working with Canadian and English health data. As a Health Data Research Associate at the World Data System, she contributes to improving health data accessibility and interoperability. Alyssa is passionate about facilitating the sustainability and equitability of healthcare research.

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